I was diagnosed with spinocerebellar ataxia in 2015.
Although I was told that I would eventually need to use a wheelchair (I now do), I could still walk quite well at that stage - although with the, increasing, need of a walking stick.
So I used my final walking days to raise funds and awareness of this rare condition (£1,100 was raised through various "walking" events - the longest of which was a 500 mile walk in Spain).
Now though, the progression of my ataxia means that my wings have been clipped somewhat. So all future fundraising can only be in Scotland from now on (and even closer to home in Ayrshire in the future?).
I have chosen MND Scotland as the beneficiary this time. Ataxia is so rare that there is no Scotland-specific charity for the condition, but it has similarities to MND: a neurological condition affecting motor abilities - and similarly incurable at present. Although, I like to look at ataxia as MND-lite (more life-limiting than life-ending).
And it is this "at present" which is so important.
If a cure can be found, it will be found. But only as a result of medical research. Which requires funding.
So, to do "my bit" I'll be taking my wheelchair for a wee (6-mile) hurl.
Please support me by making a donation. The wonderful Hunter Foundation will add a further 40% to any donation that you make. So if, for example, you donated £20 - MND Scotland would actually receive £28.